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Research

Research Data

All of Us Research Hub - US National Institutes of Health
Australia. Department of Health and Aged Care. Our Data Collections
Australia. Office of the National Data Commissioner
Australian Data Strategy - The Australian Government’s whole-of-economy vision for data
Australian Research Data Commons (ARDC) - CARE Principles for Indigenous Data Governance
Australian Research Data Commons (ARDC) - includes Australian National Data Service (ANDS), National eResearch Collaboration Tools and Resources project (Nectar) and Research Data Services (RDS)
Australian Research Data Commons (ARDC) - Publishing Sensitive Data Guide
Building digital workforce capacity and skills for data-intensive science - OECD - 2020
Centre for Improving Data Collaboration - NHSX
CEO Roundtable on Cancer
The mission of the CEO Roundtable on Cancer is to make continual progress toward the elimination of cancer as a personal disease and public health problem through initiatives that reduce the risk of cancer, enable early diagnosis, facilitate access to treatment, and hasten the discovery of effective therapies.
ClinicalStudyDataRequest.com (CSDR)
Collection of Race and Ethnicity Data in Clinical Trials - Guidance for Industry and Food and Drug Administration Staff
Common Data Elements (CDE) for More FAIR Research Data
Core Trust Seal
Data Access Request Service (DARS) - NHS Digital
Data Citation Synthesis Group: Joint Declaration of Data Citation Principles. Martone M. (ed.) San Diego CA: FORCE11; 2014
DataCite
Data Discovery at the National Library of Medicine
Data Linkage Western Australia
Dataplace: Transforming Data Sharing
Data Security and Protection Toolkit - NHS Digital
DataSeer
Data Stewardship Wizard
Data Use Ontology DUO
Data WA
Digital skills for FAIR and Open Science. Report from the EOSC (European Open Science Cloud) Executive Board Skills and Training Working Group - European Commission - 2021
ELIXIR
England. National Data Strategy - updated September 2020
F.A.I.R. access to Australia's research [Findable, Accessible, Interoperable, Reusable]
FAIR Data Principles
Federated Research Data Respository [Canada]
Google Dataset Search
HealthData.gov
Health Data Australia
Health Data Research Innovation Gateway
Health Studies National Data Asset program (HeSANDA) - Australian Research Data Commons
Independent Group Advising on the Release of Data (IGARD) - NHS Digital
Indigenous Data Network - Melbourne School of Population and Global Health. University of Melbourne
Make Data Count
National Data Commissioner
National Institute for Health Research (NIHR) Health Informatics Collaborative
NIH Data Management and Sharing Policy
NNLM Toolkit for the NIH Data Management and Sharing Policy
PeopleWA Driving data-led decision making in Western Australia
REDCap - Research Electronic Data Capture
REDCap - Research Electronic Data Capture - (HealthPoint intranet site)
Registry of Research Data Repositories re3data.org
Research Data Alliance (RDA)
Sorbonne declaration on research data rights - signed by the Go8, Russell Group, League of European Research Universities and six other research-intensive university networks - January 2020
Taking Control of Our Data: A Discussion Paper on Indigenous Data Governance for Aboriginal and Torres Strait Islander People and Communities - Lowitja Institute - January 2024
Trusted Data Repositories Community of Practice
The TRUST Principles for digital repositories [Transparency, Responsibility, User focus, Sustainability and Technology] - Nature - 14 May 2020
UK Data Service
UK Health Data Research Alliance
Vivli: Center for Global Clinical Research Data
Voluntary Indigenous Identifier Framework
wizdom.ai
World Health Organization Data - World Health Statistics
Yoda Project - forging a unified scientific community

Implementing Effective Data Practices: Stakeholder Recommendations for Collaborative Research Support - Association of Research Libraries - September 2020

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Last Updated: Sep 3, 2024 3:17 PM
URL: https://selibrary.health.wa.gov.au/research
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Subjects: Publishing, Research